The SUSIE is Kozie's baby, toddler, and little girl medically adaptive one-piece carefully designed to adapt with many medical treatments. Designed to provide safe, adorable, and comfortable dressing. This adorable Sensory soft one-piece bodysuit offers all front snap closure and snap closure at both shoulders and crotch. The overlaying belt/band covers the belly for added support and protection from little grabbing hands. Safe, easy and no overhead dressing required. Our specialized one-piece body suit was designed with the assistance of Pediatric Nurses, Special Needs Parents, and Sensory Therapists and includes easy access for medical treatments such as:
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ENTERNAL FEEDING/GASTROSTOMY TUBE FEEDING (G-TUBE) to support children with certain medical conditions who cannot eat enough food by mouth, to enhance children’s nutrition, and to aid the metabolic demands of the stress of illness such as:
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Congenital heart defects as with ventricular or atrial septal defects or severe Malformations such as; tetralogy or Fallot, Hypoplastic left heart syndrome
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Congenital Anomalies of the upper Gastrointestinal Tract such; as Esophageal Atresia, Tracheoesophageal Fistula, Esophageal Duplications, Developmental Obstructive Defects of the stomach such as hypertrophic pyloric stenosis, Gastric atresia, congenital gastric obstruction, and Duodenal Obstruction/atresia, etc.
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Metabolic disorders such as; Adrenal Hypoplasia, Argininosuccinate lyase deficiency, Argininosuccinic Aciduria, etc.
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Neurological Impairment as with Massive Brain Damage. For example Infantile Cerebral Palsy, Anoxia Brain Injury, Brain Tumors, Cerebral Atrophy, Cerebellar Hypoplasia, Cerebral Cavernous Malformation and Head Trauma, etc.
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Genetic syndromes/Chromosomal syndromes causing feeding/eating disorders such as; Alagille Syndrome, Alexander’s Disease, Alfi’s Syndrome, Allan Herdon Dudley Syndrome, Angelman Syndrome, Antley-bixler Syndrome, Barth Syndrome, Bartter Syndrom, Beckwith-Wiedemann Syndrome, Bohring, Costello Syndrome, Silver-Russel Syndrome, Franceschetti syndrome, Noonan-syndrome, Corneila deLage Syndrome etc. Syndrome related malformations such as heart defect in Down syndrome, choanal atresia in CHARGE-syndrome and many more
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Psychosomatic/psychiatric eating disorders such as infantile anorexia
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Children who suffer from cancer may need ENS during chemotherapy to help prevent them from losing weight.
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Children suffering from renal insufficiency or renal diseases often lack appetite
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Prematurity
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Absent Swallow Reflex, Achalasia, Aspiration
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Craniofacial such as Cervical Lymphangioma, Cleft pallet, etc.
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Some children with Autism
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TRACHEOSTOMIES to relieve an obstruction to breathing. This may be found in the following conditions and more
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Tracheal/Bronchial Malasia
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Polyps and weak muscles in the trachea
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Inability to clear mucus for the lungs and airway
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Premature births
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Severe breathing conditions
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Tumors such as cystic hygroma
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Severe infection such as epiglottitis or croup
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Subglottic stenosis
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Tracheomalacia
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Vocal cord paralysis
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Laryngeal spasms or injury
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Congenital abnormalities of the airway
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Obstruction of airway
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Treacher Collins
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Pierre Robin Syndromes
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Severe neck or mouth injuries
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Airway burns
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Obstructive sleep apnea
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Bronchopulmonary Dysplasia
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Chronic pulmonary disease
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Chest wall injury
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Diaphragm dysfunction
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Paralyzing or weakening chest muscles and diaphragm
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Aspiration
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Fracture of cervical vertebrae
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Spinal cord injury
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Long-term unconsciousness or coma
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Central apnea
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Congenital Central Hypoventilation
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Facial surgery
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Facial burns
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Anaphylaxis
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PORTS AND CATHETERS, Porta a Catheter, or Port a Cath are often necessary for IV medicines, fluids, taking blood samples, and other IV treatment requirements. A few conditions may require a port or Cath such as
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Cancer treatments, Chemotherapy
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Cystic Fibrosis
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Diabetes Mellitus
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Pancreatic Insufficiency
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Chronic Illnesses
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Etc.
Colors Available: Pink and White
Fabric / Material: 100% Cotton
Made in USA
Washing instructions: Machine wash in cold with like colors, Tumble dry low, only non-chlorine bleach
